Patient Fundraising Web Sites - Lend them a helping hand!
April 30, 2010
In response to requests from families who are raising funds for treatment and also to those asking to assist others with donations, we've decided to dedicate this web page.
We encourage everyone to vist their web sites and lend them a helping hand.
If you or a loved one has been approved for treatment, you are currently raising funds online and you would like us to list your site, please contact us at jlenner@xcell-center.com
*Please not that only patients who have submitted all required medical information and been approved for treatment by an XCell-Center physician are eligible to be included on this page.
Current Patient Fundraisers
Help Harvey
- Help Harvey has been set up to raise funds for us to
take Harvey to the Xcell centre in Germany for stem cell treatment
for cerebral palsy. We need to raise £9500 for treatment , flights
and accomadation. Harvey is affected by CP ( cerebral palsy) in his
arms and legs, his speech is also affected.
Gabriel's
Hope - Today, Gabriel is considered cognitively and
physically impaired He cannot read, and his vision is very limited.
He can walk haphazardly and with assistance. He cannot hold a
pencil to write. He cannot "feel" his body to control his bladder
or bowels, and has an incredibly high pain threshold bordering on
dangerous. Without continued recovery and progress, Gabriel's
future is bleak.
We are humbly asking for donations for his treatment by August, 2010. Anything will help. Please give my son Gabriel Michael a chance for recover, and a chance for life.
A Way for
Layla - This site is dedicated to raising funds for Layla
Walker, a four-year-old little girl with spastic quadriplegic
cerebral palsy with global delay, cortical vision impairment and a
seizure disorder.
She cannot sit up by herself, walk, talk, or feed herself. Despite these things, she is aware of what is going on around her and what is being said to her. She has a wonderful sense of humor and is a happy, pleasant little girl with a very sweet nature. She is making some progress, but she is still reliant on us to do virtually everything for her. We try to make her life as full as possible.
Miles for Micah - Micah was born on
April 13, 2002. He was 3 weeks early. He was not breathing at birth
and it took 2 minutes to bring him back. He spent the next 28 days
in the NICU where he had a feeding tube put in place that he stills
uses today.
An EEG confirmed that Micah would have moderate to sever Cerebral Palsy. In October of 2002 Micah was hospitalized for acute respiratory issues. After two very long weeks we were sent home with a resuscitation bag and were told Micah would probably stop breathing and never wake up.
Well true to Micah's tenacity, he did wake up and has continued to wake up everyday for the last 8 years! We have always looked "outside the box" for treatments for Micah. We have never accepted that this is the best Micah's life can be. We know in our heart that there is a better life out there for Micah and when you get to know Micah you can just feel there is someone inside of him just waiting to be set free. The Stem Cell Therapy just may be that "outside the box" treatment that could get us closer to that.
Hope for Kabongwe - I am a 4 year
old boy born 24/10/2004 at the Liverpool Women's Hospital. I have a
condition Cerebral Palsy. In the past I would have had no hope. I
now have an opportunity with new researches on stem cells.
I am a cheerful young boy whom fate has dealt a big blow. At 4 I can neither speak, sit on my own nor pretty much do anything for myself. Recent research gives me an opportunity to improve my quality of life. Me and my parents are through this website appealing for your assistance so I may receive stem cell treatment @ the XCell-Center in Germany.
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Help
for Leo - Leo Lacković is 4 year old boy who suffers from
cerebral palsy and epilepsy. After complication at birth, he
remained 20 minutes without oxygen which resulted with serious
brain and basic ganglia damage. For endoscopic implantation of stem
cells we need additional 20,000 €. For Leo, I am asking you for
help. I am hoping to raise enough money for this steam cell
treatment.
I want to give my boy a chance for a better life. It would be very nice to see Leo saying some words, reaching for his favorite toy and playing. He has a beautiful smile. The XCell-Center responded that Leo is suitable for treatment. Now, we only need money for procedure and for new hope. I pray...I hope...I dream... Please help!
A way for Zane - Zane was born
October 27, 2007 at 24 weeks gestation. He weighed 1 lb 4 oz at
birth. He was diagnosed with cerebral palsy, spastic quadriplegia
when he was 15 months old. He is unable to sit unassisted, crawl,
or walk. He gets everywhere he needs to go by scooting on his back.
His speech is delayed but he is able to say around 20 words. He is
unable to do many daily activities such as dressing himself, using
utensils to eat, and brushing his teeth.
This is heartbreaking for us as parents because we know that he gets frustrated. His mind knows what he needs to do but his body is unable. He is a very determined little boy and has defied the odds many times!
We have spoken to many families who have taken their children to the Xcell Center and have heard amazing stories of improvement. We are trying to raise $25,000. This includes the cost of the procedure, travel and hotel. Please help us reach our goal!
Ehtan's Desire - My son Ethan has
Cerebral Palsy-spastic diplegia and we are in search of legs that
work. In July 2010 we will be going to Dusseldorf Germany to have
an adult stem cell treatment in hopes that Ethan will get his wish
of having new legs.
This Blog is intended to educate as many as possible. Our story is unique as is each story of a special needs child. While our initial goal is to seek and find the best treatment for our son Ethan, it is also my goal to get this news out to the public.
The success of this treatment, whether we experience it or not through our situaton is; is just to astounding to ignore...Knowledge is power so let's spread the news to others...there is hope.
http://ethanwalks.blogspot.com/
Jasmin's Cause - Jasmin is a
beautiful little girl who is full of life, love, and laughter. She
was born prematurly at 26 weeks and had a severe brain bleed.
Because of the difficulties after birth Jasmin is unable to walk or
talk. You can see that she has a personality,an inner being that is
full of light. She laughs and cries. Many doctors told us that she
would never feel- but she does. She feels when her brother or
sister are ill- she cries when they do and laughs when they do. The
most amazing thing is that inside the body is a little girl who is
trying to come out. Her personality shines and draws people to
her.
http://jasminscause.blogspot.com/
Help for Kasey - Kasey Veach
suffered a stroke at the age of 24, shortly after he third child
was born. She and her husband are raising funds to cover her travel
costs to Germany. They have already saved enough money for her
treatment. We encourage you to visit her web site to find out more
about Kasey and her family.
Hope for Howard - Hope for Howard
has been set up to raise funds because Howard has been chosen for
stem cell treatment at the Xcell centre in Germany for stem cell
treatment for spine cord injury. Howard needs to raise for lumbar
puncture (€7,995.00) for treatment, flights and accommodation.
Howard has been is affected by spine cord injury in his arms, legs,
hands and other organs for more than 9 years now.
http://www.justgiving.com/hopeforhoward
Help
Yussuf - Yussuf's family is raising money to bring him to
the XCell-Center for treatment. Please visit his web site to find
out more.
Yussuf is 4 years old has been diagnosed with cerebral palsy. He can't use his hands or feet, can't sit or anything. he is also visually impaired, can't speak and eats via a G tube. Thanks God, h...is hearing is normal. This is a blessing from God and my road to heaven God willing. Yussuf is a very happy baby who is always smiling. The doctors tell me that he is also cognitively delayed, but i feel he is a very smart boy. we will see. Whatever comes from God is good.
Making a difference for Avia -
Currently Avaia is unable to walk, talk or communicate with her
family and this procedure could improve on her vision, basic motor
and communicative skills, potentially changing her life forever.
Unfortunately, this procedure is not available in Canada nor is it
covered by OHIP meaning we... are responsible to cover all of the
costs.
Locally, we will be hosting a variety of fundraisers to help us cover the cost aswell, we have set up a paypal account as well as a trust fund in Avaia's name. No donation is too small, and every dollar is a step closer to improving on our daughters quality of life and brightening her future.
Seeing is believing for "Big Daddy" - This will be a fundraiser for Robert Lewark aka Big Daddy. He is blind & the surgery to restore his sight will cost 20+K... The Surgery is scheduled for early September of this year. The family survives on less than $700 a month so your help is really needed.
http://www.facebook.com/event.php?eid=132391160109051&ref=ts
Smile for Jacob - This is our son
Jacob and our fight to save his life from a rare brain disease
called ALD or Adrenoleukodystrophy.
We have had to find our own treatments/cure for this as there isn't one and this website is to spread the word on what we are doing and to keep the HOPE that someone somewhere will find something to help these poor kids fight this terrible life threatening disease.
Kendra's Journey - Hi, my name is
Kendra and I am 2 years old. This website was set up for me, to
inform people of my journey to Germany in September 2010 and my
story. I have Choreoathetoid Cerebral Palsy which means I am not
able to use my muscles in my body like I need to. For this reason I
depend completely on my mom and dad for all my basic and medical
needs 24 hours a day. I am not able to do anything that most 2 year
olds would be doing. Recently I was accepted into a stem cell
treatment program in Dusseldorf, Germany.
My family will be responsible for the costly trip since my health insurance will not cover an elective treatment. Currently, I have many friends and family trying to set up various fund raisers to help cover the costs. There is a PayPal account set up, as well as a savings account. Any small amount helps and just brings me closer to a better quality of life.
http://www.kendrasjourney.com/
Friends of Isobel - Isobel Renee
is a beautiful two-year girl who was diagnosed with Cerebral Palsy
at just eight months. Isobel was born prematurely November 2007 at
just 31 weeks gestation.
The things we take for granted such as walking and talking are everyday struggles for Isobel. This treatment will help to improve her fine motor skills, as well as, improve her speech and possibly allow her to walk unassisted, but most importantly give Izzy her independence.
http://www.friendsofisobel.com
Callum's Cause - Hello! My name is
Callum David Miller and I am 4 years old. I suffer from Cerebral
Palsy, epilepsy and lot of other related and unrelated
conditions.
The aim of this website is to tell you all about me, my family and the things we are doing to raise money for equipment and treatments that hopefully will make my life much easier. Thank you for looking!
Help for
Varrel - I am trying to collecting fund for my son,Varrel,
2 years old,who suffers from Cerebral Palsy since he was 5 monhts
old.
As a mother, I will do everything I can for my loved one. It really tears me out every time I see him trying to reach or hold something but he couldn't. Even an easy task to do,he could not do. I really wish you all could help my son.
I dedicated this fundraising for my son only. Every single dollars makes a difference for him. Please give Varrel a chance for getting a better quality of life.
http://www.giveforward.org/varrels
A Journey for
Jona - Jona has struggled daily since her traumatic birth
caused by brain damage during her delivery... Eventually...
she was diagnosed with cerebral palsy and microcephaly both brain
disorders which cause lifelong, significant cognitive and physical
impairments as well as suffering with a seizure disorder.
We are relying on hope and faith that our daughter Jona will show signs of improvement. We remain realistic and optimistic with the understanding this is not a cure. However, there is a possibility Jona's speech, balance or feeling in her extremities may improve as well as eliminate her seizures with stem cell therapy. Jona will never live a normal life and she will always require Assisted Living. However, if we can enhance her quality of life, we are that much closer to having accomplished something as her parents… Sincerely, Paul and Joanne Ghelli
http://funds.gofundme.com/StemCellTreatment/AJourneyforJona
Hope for
Sydni - Sydni's first seizure was at 9 months of age. She
had 5 seizures by the age of 15 months. The most heartbreaking
moment was the day Sydni quit breathing in the ER and they had to
intubate her to help her breathe. My daughter could have died! At
age 15 months Sydni was medicated for her seizure disorder. It was
no longer febrile seizures. Sydni had "Epilepsy".
...Sydni's significant decline started in April 2007 after beginning medication again. After many medications, Sydni?s cognitive function rapidly declined. She lost a lot of her language and social skills. To date Sydni has 4-8 seizures a week, usually in one night. This puts Sydni in an autistic state of mind, and pushes her to regress further.
Sydni received stem cell therapy by LP in March 2010. We have seen much improvement in speech by 50%, and slight seizure decrease. We plan on returning to Dusseldorf for a second treatment and are seeking donations help pay for it. Thank you.
http://hopeforsydni.org/Home.aspx
